Ok. So Genvieve has had a pretty rough weekend, but she is ok now. Friday, the nurses tried to pull out one of her chest tubes, and air went inward, collapsing her lung and causing her to pass out and also need to be put back on the breathing machine. She quickly recovered her breathing while on the respirator and was extubated a few hours later. Understandably, this event has really scared Genvieve and she was very anxious all night Friday and through Saturday. All her tests from Saturday morning, including a chest xray, perfusion scan, and oxygen levels were good, but she still didnt feel right.
Unfortunately, her breathing became very labored and she had to be put back on the respirator Saturday night. Of course it was very scary, but she was woken up very quickly and communicating with us on respirator. The issue was that her CO2 was very high. This can be from not having the strength to exhale completely, but the doctors aren't entirely sure why this happened. Sunday, they took her off the respirator and she is breathing very well again all on her own, on no oxygen. She is very weak and still in the ICU but doing a hell of a lot better. These are some set backs but actually that is not that atypical in lung transplant patients. She is fighting hard and is one tough, amazing woman. She is still smiling and making her jokes between resting and concentrating on fighting. Please send love this way. xo-Brianna
Tuesday, February 19, 2013
Friday, February 15, 2013
An Update on Gigi
Hello everyone.
Genvieve is doing ok, and her lungs are doing great. These past few days have been pretty hard for her though. She had to go under general anesthesia again to get her vocal cord repaired, and it has made her groggy and also has caused some additional pain, as well as made her feel more congested. Basically there are a million procedures a day that require poking and prodding, and she is already exhausted. Hopefully she will get to eat soon so that she can get some nutrition and enjoyment. All said, her new lungs are doing really well. She walked 20 laps on Tuesday which is amazing! Please send some good vibes and happy energy this way.
xo
Genvieve is doing ok, and her lungs are doing great. These past few days have been pretty hard for her though. She had to go under general anesthesia again to get her vocal cord repaired, and it has made her groggy and also has caused some additional pain, as well as made her feel more congested. Basically there are a million procedures a day that require poking and prodding, and she is already exhausted. Hopefully she will get to eat soon so that she can get some nutrition and enjoyment. All said, her new lungs are doing really well. She walked 20 laps on Tuesday which is amazing! Please send some good vibes and happy energy this way.
xo
Wednesday, February 13, 2013
5 days in...An Update
Hello all.
Genvieve's new lungs are still doing great! She was transferred out of ICU on Monday and is in a quieter and private room. pheww. Things are a little bit more painful the last 2 days, as anesthesia wears off and she wakes up and moves around more and more. After months of not
wanting to eat, Genvieve is finally hungry. Unfortunately she is not not allowed to eat yet- so that is frustrating. She is allowed three ice chips an hour, and yesterday was making sure her mom and dad
picked out the biggest ice chips in the bunch. ;) Her left vocal cord is paralyzed, which is very common, so it makes it hard to swallow safely, or talk really. ENT will do a procedure to fix that today and we hope that she will get to eat by mouth soon. Its a tough process but of course Gigi is
working hard and casting beaming smiles between catching a few minutes of sleep. She was told that she should try to do 10 laps on Monday, so of course Genvieve did 11 :) Shes amazing! Keep her in your thoughts and prayers and will some positive, pain-free energy this way.
Will keep you posted...
Genvieve's new lungs are still doing great! She was transferred out of ICU on Monday and is in a quieter and private room. pheww. Things are a little bit more painful the last 2 days, as anesthesia wears off and she wakes up and moves around more and more. After months of not
wanting to eat, Genvieve is finally hungry. Unfortunately she is not not allowed to eat yet- so that is frustrating. She is allowed three ice chips an hour, and yesterday was making sure her mom and dad
picked out the biggest ice chips in the bunch. ;) Her left vocal cord is paralyzed, which is very common, so it makes it hard to swallow safely, or talk really. ENT will do a procedure to fix that today and we hope that she will get to eat by mouth soon. Its a tough process but of course Gigi is
working hard and casting beaming smiles between catching a few minutes of sleep. She was told that she should try to do 10 laps on Monday, so of course Genvieve did 11 :) Shes amazing! Keep her in your thoughts and prayers and will some positive, pain-free energy this way.
Will keep you posted...
Sunday, February 10, 2013
It's me!
Keeping it short and simple.
I had a good day. All my tests results are good so far. My pain is under control and I did two walks. The second walk this afternoon went really well - probably bc i had the best support group my mom, dad, bro, sisinlaw and of course my nephew Everett. It meant so much to get to see him! I felt good on my walk and walked much further than anyone expected.
I can't eat or drink anything so I'm starving. I'm hoping they will let me eat a little tmrw after another test. They started my feeding tube this afternoon but they are running it so slowly it hardly adds anything. But everything is going in the right direction so I'm very very very happy.
Maybe I will get out of ICU tmrw. That would be nice. A quieter room.
Ok that's its. Pain meds make me groggy. Thanks again for all the support! I'm surrounded by wonderful caring people!!
Sent from my iPhone
I had a good day. All my tests results are good so far. My pain is under control and I did two walks. The second walk this afternoon went really well - probably bc i had the best support group my mom, dad, bro, sisinlaw and of course my nephew Everett. It meant so much to get to see him! I felt good on my walk and walked much further than anyone expected.
I can't eat or drink anything so I'm starving. I'm hoping they will let me eat a little tmrw after another test. They started my feeding tube this afternoon but they are running it so slowly it hardly adds anything. But everything is going in the right direction so I'm very very very happy.
Maybe I will get out of ICU tmrw. That would be nice. A quieter room.
Ok that's its. Pain meds make me groggy. Thanks again for all the support! I'm surrounded by wonderful caring people!!
Sent from my iPhone
Saturday, February 9, 2013
Update
Gigi is off the respirator and breathing on her own! 97% on room air! She has a ton of tubes and monitoring galore but her pain is under control and she even cracked a smile when I told her deena was complaining that the snow had interfered with her long run. Breathing is a little weird to her which is to be expected but she's doing great. About to head for a walk....!!!!
Will get back to u all shortly.
xoBrianna
Sent from my iPhone
Will get back to u all shortly.
xoBrianna
Sent from my iPhone
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