Friday, February 22, 2013

One day at a time...

When Genevieve had this great idea to start a blog, what she really meant is that it would be a great idea to start a blog where all of her friends get a chance to be guest bloggers :)  My turn! And I apologize in advance for the length – just so much I want to share!

Let me start off by saying that she is doing really well. Brianna previously mentioned that G had a rough weekend, and gave you all of the medical lingo (in case you don't know, it's actually Dr. Brianna, which means we'll leave the medical updates to her)!  I won't dwell on details, but those were the hardest few days for G so far, physically as well as mentally.  It was bad, really bad, but the bottom-line is that she pulled through, and is back on track.

Michelle and I drove down earrrly Tuesday morning, and when we arrived at the hospital, we were told to put on protective gowns/gloves to prevent infection.  Before we walked into the hospital room, I was honestly imagining the worst, but to my surprise, she looked great, even though showering has dropped to the bottom of her list of priorities :)  She had just come out of intensive care that morning, and continued to have difficulty talking, due to a surgery she had on her vocal cords last week. Anyway, she welcomed us with big hugs, even though she barely had enough energy to pick up her own chapstick the day before.  Her body went through a lot of trauma over the weekend, so she's slowly trying to rebuild her strength and stamina.  She compared herself to a baby, who has to learn everything from zero, but she's making progress, even able to stand up on her own now. 

G is on more meds than I can count. She has an IV pole with bags and bags of medicines hanging next to her bed. There are huge tubes coming out of her body for all kinds of purposes (ie suction, drainage, etc.).  The slightest move in the wrong direction can cause major pain.  We saw where the surgeon made his incision across her chest, and the staples he used to close her up.  I have visited her in numerous hospitals, but the atmosphere here is very different. It's hectic, and you can feel the sense of urgency in the air.  People are constantly coming in and out of the room at all hours – nurses, doctors, physical therapists, stress management coaches, etc. It's overwhelming and stressful, even for a visitor. I may or may not have almost fainted 3 separate times, and G not so subtly reminded me that this is why I switched out of pre-med while we were in college :)

The first highlight of the visit came when her doctors gave her the OK to eat something of honey-like consistency (after not eating or drinking anything for 2 weeks), and like Bri said, for G, this means fancy homemade truffle-infused mashed potatoes made by Claude!  If only I could have captured the look on her face!! Pure bliss!!

The second highlight was during her treadmill exercise…it's hard to believe she had been bedridden for the previous 4 days (and constantly connected to an oxygen tank for the past 6? months), because she did the treadmill not once, but twice that day!!! And although I've seen countless people finish all kinds of races, I have NEVER been so proud of someone for walking 15 minutes at a speed of .6 mph (you read that correctly --> .6 mph would equate to 1 mile in 100 minutes).  But she did it with her head held high and with a smile on her face.  This is somewhat of a personal triumph for me, because she has always been my #1 cheerleader for whatever race I choose to do, whether it's in New York, Hawaii, Kentucky, wherever, she always has her 'Go Deena' placard ready to go! This was the first time the positions were switched, and it was really touching for me to be on the sidelines cheering her on for once…definitely one of the many moments to bring tears to my eyes.  Now she's already up to 1.0 mph!! Put the Ethiopians and Kenyans on alert!! ;)

It was an emotional visit for all of us. Lots of tears, good ones and bad ones.  She talked to us about moments when she's sad and/or scared. Like when she feels like she is doing everything she is supposed to be doing, everything that is within her control, yet something can and does go wrong.  She ends up feeling helpless, anxious, powerless, etc. She also feels a sense of obligation to the previous owner of the lungs to do them justice. And she will. It's just daunting.

There were also lots of laughs, the deep hearty ones that used to make G go into a coughing fit, but during this visit, I don't think I heard her cough even once. In the 16+ years I've known her, not a day has passed without a cough. It's hard to believe this is her new normal.  Woo hoo to healthy lungs! 

The highlight of the highlights has to be the Post Love Project, organized by Sarah, another childhood friend of G, who collected 'postcards' from friends, and friend of friends, to share memories, stories, pictures, artwork, etc. with G.  We were lucky enough to be there when the package arrived. I described the scene as 'Christmas in Durham', and it really was, although in this scenario, I guess Ellie plays Santa :)  G had no idea this surprise was coming, and as she opened the package, her expressions went from confusion to excitement to utter joy. There were postcards from childhood friends, with whom she hasn't spoken to since 6th grade, or friends from Gold Key Lake (her cabin in the Poconos), college friends, high school friends, teachers, childhood crushes, and postcards from as far as Uganda, Zimbabwe, London, France, New York, PA, NJ, MA, Miami, New Orleans, and more. There were pictures of her as a little girl in dance class or swim team, and pics from college when she dressed up like a space alien at the Science Museum in Boston to win tix to London (no, she didn't win), pics of her convincing friends to swim across the Gold key Lake in the Poconos and then being 'banned from the beach' for the rest of the summer, drawings from her friends' babies, vacation pics, motivational quotes, and on and on and on.  Each story, picture, or card was unique and heartwarming.   It was such a special evening, and it really touched her to see how much love and support there is for her. 

Although it did break my heart to see her in the hospital, I left there feeling inspired and hopeful. I'm feeling optimistic about her progress. Her attitude is upbeat and positive. She has a wonderful team supporting her, both professional and personal, all wanting her to succeed. The staff at Duke is excellent. Ellie and Claude are the same loving supportive parents that they have always been, continuing to be there day after day, night after night. Ellie is a rock. And Brianna is simply amazing, not only as a childhood bestie, but also has a bright knowledgeable doctor.   And of course all of you are constant sources of encouragement as well. She is so grateful for the support. I can't tell you how many times she whispered 'Thank You' to anyone and everyone during our visit. The support is invaluable. When she can't sleep, which is quite often, she will turn on some music and look through the pics on yogi. Hint hint – keep posting to gigistransplant@yogile.com (just send pics to the email address). I will post some pics from the visit as well. 

The last good piece of news is that we heard she might be able to see Juju soon!

G – As you prepare to say au revoir to your old lungs and welcome in the new ones, just remember, "Life is not measured by the number of breaths you take, but by the moments that take your breath away."

I'm so excited for you!! Keep up the good work!!

XOXO Deena

Gigi, a treadmill, and Pandora

As many of you know from Deena, Gigi is out of the ICU and rocking out
in her new floor room. She is doing great. She already walked 45
minutes on the treadmill today while listening to the Pandora station
"the Drums" (which btw is awesome if you havent listened to it), and
sporting her very cool Puma gym shoes. She still has 4 chest tubes
which are on suction. The goal is to slowly lower the suction, then
have them attached to nothing, and then removed all together. They've
already started the process and shes doing awesome! She is only
allowed honey-thick pureed food, which for most people in the hospital
means pudding. For Gigi, this means Dad-made truffle oil mashed
potatoes with pureed ham or carrots. She is looking tough and
beautiful as ever.
Send love. xo.

Tuesday, February 19, 2013

Finally.... an Update.

Ok. So Genvieve has had a pretty rough weekend, but she is ok now. Friday, the nurses tried to pull out one of her chest tubes, and air went inward, collapsing her lung and causing her to pass out and also need to be put back on the breathing machine. She quickly recovered her breathing while on the respirator and was extubated a few hours later. Understandably, this event has really scared Genvieve and she was very anxious all night Friday and through Saturday. All her tests from Saturday morning, including a chest xray, perfusion scan, and oxygen levels were good, but she still didnt feel right.
Unfortunately, her breathing became very labored and she had to be put back on the respirator Saturday night. Of course it was very scary, but she was woken up very quickly and communicating with us on respirator. The issue was that her CO2 was very high. This can be from not having the strength to exhale completely, but the doctors aren't entirely sure why this happened. Sunday, they took her off the respirator and she is breathing very well again all on her own, on no oxygen. She is very weak and still in the ICU but doing a hell of a lot better. These are some set backs but actually that is not that atypical in lung transplant patients. She is fighting hard and is one tough, amazing woman. She is still smiling and making her jokes between resting and concentrating on fighting. Please send love this way. xo-Brianna

Friday, February 15, 2013

An Update on Gigi

Hello everyone.
Genvieve is doing ok, and her lungs are doing great. These past few days have been pretty hard for her though. She had to go under general anesthesia again to get her vocal cord repaired, and it has made her groggy and also has caused some additional pain, as well as made her feel more congested. Basically there are a million procedures a day that require poking and prodding, and she is already exhausted. Hopefully she will get to eat soon so that she can get some nutrition and enjoyment. All said, her new lungs are doing really well. She walked 20 laps on Tuesday which is amazing! Please send some good vibes and happy energy this way.
xo


Wednesday, February 13, 2013

5 days in...An Update

Hello all.
Genvieve's new lungs are still doing great! She was transferred out of ICU on Monday and is in a quieter and private room. pheww. Things are a little bit more painful the last 2 days, as anesthesia wears off and she wakes up and moves around more and more. After months of not
wanting to eat, Genvieve is finally hungry. Unfortunately she is not not allowed to eat yet- so that is frustrating. She is allowed three ice chips an hour, and yesterday was making sure her mom and dad
picked out the biggest ice chips in the bunch. ;) Her left vocal cord is paralyzed, which is very common, so it makes it hard to swallow safely, or talk really. ENT will do a procedure to fix that today and we hope that she will get to eat by mouth soon.  Its a tough process but of course Gigi is
working hard and casting beaming smiles between catching a few minutes of sleep. She was told that she should try to do 10 laps on Monday, so of course Genvieve did 11 :) Shes amazing! Keep her in your thoughts and prayers and will some positive, pain-free energy this way.

Will keep you posted...

Sunday, February 10, 2013

It's me!

Keeping it short and simple.
I had a good day. All my tests results are good so far. My pain is under control and I did two walks. The second walk this afternoon went really well - probably bc i had the best support group my mom, dad, bro, sisinlaw and of course my nephew Everett. It meant so much to get to see him! I felt good on my walk and walked much further than anyone expected.
I can't eat or drink anything so I'm starving. I'm hoping they will let me eat a little tmrw after another test. They started my feeding tube this afternoon but they are running it so slowly it hardly adds anything. But everything is going in the right direction so I'm very very very happy.
Maybe I will get out of ICU tmrw. That would be nice. A quieter room.
Ok that's its. Pain meds make me groggy. Thanks again for all the support! I'm surrounded by wonderful caring people!!

Sent from my iPhone